Lewy Body International

Lewy Body International promotes awareness and understanding of Lewy Body Dementia (LBD) through a network of dedicated organizations worldwide. We share information and expertise to improve the lives of people affected by LBD everywhere.

Though the missions of our individual member organizations may differ in focus, our unifying goal is to build awareness, improve people’s lives, and to build a global community of individuals and groups dedicated to this cause, while providing insight and education to health care professionals, policymakers and the public.

WHAT IS LEWY BODY DEMENTIA

Despite being relatively unknown, Lewy Body Dementia is believed to be the most common form of cognitive impairment after Alzheimer’s disease, affecting more than ten million people worldwide. The number of people impacted is predicted to increase dramatically as life expectancy increases and diagnostic efficacy improves.

WHAT LEWY BODY INTERNATIONAL IS DOING

We are actively collaborating to help shine a light on LBD, enlighten all those touched by the condition, and lessen the darkness it can bring. As our first joint effort, and in celebration of the inaugural World Lewy Body Awareness Day on January 28, 2024, our partner organizations around the world amplified awareness and shared best practices with online and in-person events and outreach. This event will be expanded on January 28, 2025.

ABOUT LEWY BODY INTERNATIONAL

Founded in 2022, organizations from 11 countries now form a cooperative alliance to share knowledge and resources to build awareness, increase understanding, and improve outcomes and treatments for all people affected by LBD. These dedicated groups and individuals are collectively committed to improving the lives of people who live with, or provide care for persons living with LBD. In addition, they are providing education, care partner support, advocacy, community building and outreach to policy makers, and to the scientific, academic and medical communities.

Secretariat by The Lewy Body Society, UK.

CONTACT

For more information, please contact lewybodyint@gmail.com

AR:  Asociación Lewy Body Argentina 

AU/NZ:  Lewy Body Dementia Australasia 

BE:  La Maladie à corps de Lewy en Belgique

CA:  Lewy Body Dementia Canada

CZ:  Czech Brain Aging Study (CBAS)

ES:  Lewy Body España

FR:  A2MCL - Association des Aidants et Malades à Corps de Lewy

IE:  Lewy Body Ireland

UK:  The Lewy Body Society

US:  Lewy Body Dementia Association

US:  Lewy Body Dementia Resource Center