Lewy Body International
Promoting awareness & knowledge of Lewy Body Dementia through a network of dedicated LBD organisations worldwide.
Our International Partners
Languages
This website can be translated to most languages
About Lewy Body International
MISSION
Lewy Body International promotes awareness and understanding of Lewy Body Dementia (LBD) through a network of dedicated organizations worldwide. We share information and expertise to improve the lives of people affected by LBD everywhere.
Though the missions of our individual member organizations may differ in focus, our unifying goal is to build awareness, improve people’s lives, and to build a global community of individuals and groups dedicated to this cause, while providing insight and education to health care professionals, policymakers and the public.
WHAT IS LEWY BODY DEMENTIA
Despite being relatively unknown, Lewy Body Dementia is believed to be the most common form of cognitive impairment after Alzheimer’s disease, affecting more than ten million people worldwide. The number of people impacted is predicted to increase dramatically as life expectancy increases and diagnostic efficacy improves.
WHAT LEWY BODY INTERNATIONAL IS DOING
We are actively collaborating to help shine a light on LBD, enlighten all those touched by the condition, and lessen the darkness it can bring. As our first joint effort, and in celebration of the inaugural World Lewy Body Awareness Day on January 28, 2024, our partner organizations around the world amplified awareness and shared best practices with online and in-person events and outreach. This event grew for its second iteration on January 28, 2025, and the third is to occur January 28, 2026.
ABOUT LEWY BODY INTERNATIONAL
Founded in 2022, organizations from 11 countries now form a cooperative alliance to share knowledge and resources to build awareness, increase understanding, and improve outcomes and treatments for all people affected by LBD. These dedicated groups and individuals are collectively committed to improving the lives of people who live with, or provide care for persons living with LBD. In addition, they are providing education, care partner support, advocacy, community building and outreach to policy makers, and to the scientific, academic and medical communities.
Secretariat by The Lewy Body Society, UK.
CONTACT
For more information, please contact lewybodyint@gmail.com
International Members
Help Spread The Word
3rd Annual World Lewy Body Day ::: January 28, 2026
00
DaysDays
00
HrsHours
00
MinsMinutes
00
SecsSeconds
World Lewy Body Dementia Day, January 28, 2026
Improving Lives with Global Awareness
Organizations from eleven countries collectively celebrate the third annual World Lewy Body Dementia Day on January 28, 2026. This is the birthday of renowned neurologist and neuropathologist Dr. Fritz Jacob Heinrich Lewy (1885-1950) for whom the aggregations of misfolded alpha-synuclein proteins in the brain, now known as Lewy Bodies, were named.
HOW YOU CAN HELP
Get involved and help to spread the word about Lewy Body Dementia, and celebrate January 28th’s World Lewy Body Dementia Day by adding, commenting and sharing posts about it on social media; emailing friends and colleagues; contacting your elected officials; and speaking about it openly wherever possible. Getting actively involved in online and local support groups, and supporting your regional LBD groups makes a distinct difference to those living with LBD.
Subscribe
Sign up to hear from us about events.
History
Awareness Builds with 2025 World Lewy Body Day
January 28, 2025 marked the second #WorldLewyBodyDay where participants from across the globe banded together to raise awareness for this condition that is so devastating and shockingly common, but about which so little is known.
Inaugural World Lewy Body Day ::: January 28, 2024
Following a meeting of members of Lewy Body International it was decided to introduce a World Lewy Body Dementia Day on January 28, 2024. This date was chosen as it is the birthday of Dr Lewy
To mark the day, individuals and organisations were encouraged to participate by creating awareness and reaching out to the Lewy Body community in their country. The inaugural event had active participation in more than ten countries.
Lewy Body International was launched in June 2022 in Newcastle at the International Lewy Body Dementia Conference.
News
05/02/2024 Lewy Body Sverige (Sweden) launches their new website
26/04/2023 - Welcome to our new member Lewy Body Belgium.
01/08/2023 - Welcome to our members : LBDA (Lewy Body Dementia Association)
and Asociación Lewy Body Argentina ALBA
01/06/2022 - Lewy Body International established
Contact Us
Lewy Body International
WN3 4HE, Wigan, Greater Manchester, England, United Kingdom
lewybodyint@gmail.com <<www.facebook.com/LewyBodyInternational<<
Hours (UK/GMT)
Mon | 09:00 a.m. – 05:00 p.m. | |
Tue | 09:00 a.m. – 05:00 p.m. | |
Wed | 09:00 a.m. – 05:00 p.m. | |
Thu | 09:00 a.m. – 05:00 p.m. | |
Fri | 09:00 a.m. – 05:00 p.m. | |
Sat | Closed | |
Sun | Closed |